oh beast! nightmares of sheep. goats. fire that sinks like water.

We wait.
I may be here when they lock the doors.

I am here to tell someone about the rate of attrition 
how at dusk

all the people disappear.

I live on the hippest street in the nation
Or the second hippest if you are thinking about the other one I don’t know its name myself although I think I know where it is.
Unless it is someplace else.
But I am certain that my street is hipper than any street there could ever be.

Point being there are always a number of people within a hundred yards of me.
Heading in.
Heading out.
Passing through.

Those that I would or have invited to stay for a moment, though.
persistence is agnostic of all of me and so
I place it upon you
a halo
and its displaced space
almost a dent
a trough
where
for a short time
light will chase its tail
ink-tipped
ravenous

They disappear or that is at dusk I am struck with all of their vanishings at once whether or not anything of note happens to occur wherever they are or were or I imagine them to be. The hush is quite nearly devastating the sidewalks bright and empty the sky congested with shadows horsemen without weight or volume nearly almost partially blocking the sun.

As far as I can tell nobody besides myself feels the chill or is it the uptick in humidity yet entire cities vanish some half century ago the heavenly curtain was to be ripped open it would be for certain or for completely unpredictable but certainly soon but unexpected the great surprise predicted with all assurance whole populations slipping quietly from this earth with an ear-splitting shout TOO LATE or SUCKS TO BE YOU DUNT IT except it would not be everyone only the very holiest airplane captains and the crew also if they all of them were really really really truly baptized the single correct way but even some of those would turn out to have done it all wrong and somehow although their true numbers were meager the disaster would be large enough to be disastrous airships abandoned left and right passengers consigned to the collective gravity of their own worldly sins centered as it is within Lucifer’s own playground all the headless planes converge deep in the earth depositing the unwashed directly into the lake of fire below our feet.

Your feet. My feet.
That was a faster trip than I expected.
Oh we have been waiting for you. Waiting and waiting.

I may have been eight when I learned of this freight train of a rapture the one bearing down with all arrested haste as it had already for the hundred fifty-ish years since it was sifted out of the King James Bible with all the hermeneutic ingenuity one could hope to find in an American preacher. My family had not mentioned anything about it yet but early in the school year a Jack Chick tract somehow landed on the windowsill of my fourth grade classroom and as it was made of words and pictures I had no power not to pick it up I would and did and still do read shampoo labels and pill bottles if they appear in arm’s reach along with a moment to fill but this pamphlet existed only to be read thus I trusted it all the more to be rewarding and useful but instead the little comic was almost terrifying only too confusing at first to be quite so. It told of a cosmic endgame of unbridled divine revenge and posed it without any reason I knew of in the place of a future I had not yet even thought about because the other five billion billion possibilities had always been open and always would be unless they were about to be unceremoniously mowed down beheaded strafed pulverized and buried.

Because god was really mad about..

something. To this day none of the excuses offered neither the simple ones nor the sophisticated have ever been anything but exasperating. Arbitrary. Stark naked all resentment and fear hanging out swollen just past the point of restraint so that you cannot decide whether to laugh or run. 

I took the leaflet home. Mom would know if this stuff was true or real or anything I needed to worry about she explained things all the time and it was clear to me then that she already knew everything I would ever need to know.

It was. Something to worry about. Or it would be. I vaguely recall being told I could put off this worry until some time a little later that I would know was the time because it would be the time and I would know by then I would not have to ask I would just know it which indecipherable moment would shortly become the focus of vicious ellipses of thought so quietly insistent how was I to know then the howling the shrieking the twisted diamond bits exquisitely drilled years they were on tight fine points of doubly bound preacher’s logic.

Time was on their side. They would wait as long as they had to but no longer a couple of decades would make for a vast polish of precision-ground glass. One note so high nobody heard it not me not you not anyone still living. Every now and again I find a shard still singing as though it had landed not an hour before.

I am ahead of myself or I would be if I knew where to go to get there.

But I don’t remember much else about the truly bad news that was to get so much worse and for so long only I recall crawling on her lap for some sort of reassurance. The memory ends there. A vague hint of
shock like that was not what I came up here for oh dear oh dear oh dear oh dear oh dear.

Where will I go now where do I wait.
Could it be time yet.
How about now.

The rest of that fall is a nighttime serial in which I try to cry myself to sleep over and over and over and over but there is exhuasted crying because you have just had enough of the day and there is I cannot sleep with this unbearable knowledge and

there is no unknowing
and
there is no.

There just was not.

I was unable to say what the problem was when asked. Someone would rub my back while I pretended to fall asleep because I could not explain why that was not working either. What comfort could they possibly offer–clearly they had no more power than I to change the ending of this weird-ass stage play we had all been born into without ever once asking. So I stayed still as they left my room. Sleep would come eventually to swallow the ruined cosmos for a little while. By spring I could see that no crying of mine would bring it back to life and so I gave up.

I could not explain that gods plan had drained life of sense and replaced it with a terrible and ruthless joke. All of the color all of the motion all of the life all of the music the running water the rocks and hills and the grass the forests awash in moss and echoes of every breeze every hoof every breath the taking flight and sitting still all of that for one question. One lousy question and the majority of all of this and all of us would flunk.

It did not matter to me that I did not have to worry for myself right then. Add me to the damned biomass of Earth or subtract me: it made no significant difference in the overall volume of the final kill that would not even be final but ongoing and ongoing and ongoing until even a blind idiot god would have to signal somehow that enough was enough as the balances toppled lopsided with recompense.
I understood this then but could not have said even to myself what it was I understood. Besides which understanding could not overcome my absolute inability to disbelieve what my mother told me. My eight was your six besides who at eight is able to back themselves like that to walk unassisted like that to give themselves the benefit of the doubt like that.

I knew. I knew that I knew.
And I knew that it was not possible to go on knowing.

I had to fold.

It was the end
not the beginning of the end
not the end of the end
all of the end all of it
For once and for all

This would not be the last one
but it was the last one where
I was allowed
to maintain that
nobody had warned me.
 

she wrote it down so I thought ok I will do this one more time

I put a comment on this one blog post that has somehow drawn almost everyone to it: “He Wrote It Down“. I am copying the comment or that is I have already copied the comment I left and plan on pasting it here at the end of this which is mainly just a pointer to where or why or how I decided to make this one comment on the internet.

Because it can happen that I think I have no words until it becomes clear that I do. And also that I don’t.

This is what I wrote over there:

I am not sure how I got here only that I looked at my browser over coffee and here was a tab open right here. From yesterday before I succumbed to what is called sleep.

I am not sure I should leave a comment at all other than to say yes these things happened to me too only not exactly the same things because it is different for everyone only the inability to abide with oneself seems quite similar across all of the way too many stories I have heard from others and the way too many stories I have to tell and have been telling and telling and sometimes I think I am going to

run out of breath and fall right back into the earth and that will be that.

I was a girl when my brother raped me, when my church taught me I was going to burn in the Lake of Fire, when my family let me believe they were going to disappear in the rapture and I would be left behind, when some young man I had never seen before and would never see again tackled me on the beach and led me off behind the dunes and told me to take my clothes off and I remember staring into the sun and then I have my clothes back on and am looking for my grandmother who had left me playing in the sand and she finds me and says there you are and I say here I am and then nothing else.

I tell people I fell silent at 15 and did not learn to talk again for 15 more years which is sort of true although talking even now often feels like not talking at all. There are no words for it or that is no words that will cover it all take care of it all clean it up put clothes on it and take it home somewhere safe except home was not that so somewhere else I have to guess but I have not found it yet.

I am not a girl now perhaps obviously but what gender I am I cannot say or that is I haven’t found a name for it but I look like a middle-aged, balding, bearded, somewhat shall we say bohemian man. I have no idea what it is like to be a male survivor of sexual abuse; what I hear does not resonate with me. For me gender was violently enforced until it wasn’t anymore and I could be who I was except that over the course of one’s lifetime the possibility to be any particular of the ones you thought you would be narrow until maybe you are just you because none of the recognized options fit. It was not clear to me until relatively recently that being a nonbinary-gendered survivor of sexual abuse would be akin to being not a unicorn but more like a..
well there is no word for that either it turns out.

no man’s land. no woman’s land.
land? do you see a place to land?
the map says land here. why do I not see any.

Everyone on my mom’s side of the family has experienced some form of abuse or another–the majority of it sexual. For at least five generations that I know of. Everyone knows but nobody has a clue what to do that won’t upset any of the adults which is apparently the greatest sin there is. The children will be ok. They have to be. We all are ok aren’t we. Didn’t we turn out alright.

Speaking up is a little like talking to earless creatures who stare at you there disrupting the peace so discourteously. It’s not like you are telling us anything new. Can’t we just put it all behind us. We are tired. We did our best. Let it go.

It won’t let me go. Everything you forget I have to remember. The panic you swallow swallows me.
Every drop of denial you squeeze out of your life explodes behind my eyes at the temples the headache almost older than I am now.

I am 53. I was not planning on living this long. My body is starting to need attention in the way bodies will when they spend half a century resisting gravity and friction and oxidation and all the other agents of entropy that will soon catch up with us. I wish I knew what to do. I mean I have a doctor but I am disabled by what is called by some Complex PTSD and the number of symptoms has become bewildering and more than I can even keep up with trying to make appointments for.

And the stories. I dream them, I sing them, I write them, I eat them and drink them for breakfast and lunch by dinner I cannot get any more down so I dream some more and start over.

I am just going to leave this here.

uncle sam? is that you?

Context matters:

I live in the US.
I receive Supplemental Security Income, or SSI, because I am disabled.
I do not receive Social Security Disability Insurance, or SSDI. I will explain why that is.
The Social Security Administration administers both SSI and SSDI, determining eligibility and overseeing the continuing disbursement of benefits.

please sirs and mesdames may I have another:

Less than a month ago I received a letter from the Social Security Administration saying that I needed to come in and apply for SSDI to make sure I was not eligible for it, because if I were, that would affect my SSI payments. They had scheduled me an appointment. The day I got the letter, the appointment was a week away. It did not contain any other clues as to why SSDI had become an issue in my case.

I did not go to the appointment. I wish this had been a casual oversight; it would have been much less painful that way.

Depression and PTSD can–and usually do at the slightest opportunity–make it extremely difficult for me to keep any sort of engagement on anything like Earth time. It took me six months and three consecutive appointments to finally be able to appear for a CT scan this past spring and summer. Part of the holdup–but by no means all of it–was that it took me several weeks to be able to begin to take a shower. Once started, the shower itself occupied the better part of three days. Well, as far as I was concerned showering was in fact the worst part of those three days. Figures of speech do not always line up exactly the way you want do they.

I should mention that the CT scan was ordered in part to rule out cancer. So you see what it looks like when I am highly interested in getting something done while that something happens also to set off a variety of emotional/physiological disturbances despite my best efforts to remain undisturbed–or sufficiently undisturbed that I can see to the doing of the something. Thus, seeing to it will take a very. very. very. long time. And that is with lots of help, lots of rescheduling, lots of no it’s okay let us know if anything would make it easier. Absent the help and yes this extremely slow response time might be what kills me. Chronic problems are chronic.

So that is an example. To keep an engagement with an entity holding a great deal of power over me entails a great deal of anxiety management, behavior management, cognitive management, and autonomic nervous system management–short of heavy sedation, this last is hit-or-miss at best. These all require very careful planning to prevent, where possible, and manage, where not, unrelated stressors that inevitably pile themselves on in obeisance to the sheer randomness of the universe.

The chances of me being able to keep such an engagement when issued one week in advance without the slightest warning or indication are, practically speaking, just about zero. This is something I have learned I cannot beat out of myself, shame out of myself, berate out of myself, or even softly cajole out of myself. The only way to work around it at all is to proceed slowly, attentively, and without coercion, whether internal or external. You could say I have a hair trigger for coercion. The slightest hint of it and I just, sort of, stop.

In that week’s time leading up to the appointment I was able to: consider emailing my former advocates for advice; notice on their website that they strongly suggest calling instead of emailing if time is short or the need urgent; decide instead to call them; spend a few days trying to move myself to pick up the phone and make the call, without success; ask myself whether I might just email them anyway; reach no conclusion on the email question other than that maybe I was not supposed to do that so I should try one more day to call; figure out for myself why I was finding it so difficult to call them when I had done it before without having to overcome quite this much resistance; realize that I needed to change tactics; and then to–ok, by this time the appointment was three days in the past. I did not make it to the step of finding someone to call Social Security for me to request a later appointment. This would have occurred just after I considered whether or not I could do that without help. I did not get to that step either.

I should probably add that during this time I was also confronted with some bare hint of return of the mental phenomena that Zyprexa had been medicating me against (nominally or presumably or in effect–no idea which) up until just about a year ago, when I had to be taken off the drug after developing tardive dyskinesia. That whole episode is not over yet, but the week with the whirly thoughts turned out ok only it required nearly all of my concentration and energy to ascertain how best to respond to the whirly thoughts and it left me a little jumpy about how the whirly thoughts might respond to my response as time goes on. I did not spend all that much time trying to call for help with the Social Security appointment because there was not all that much time left over. I was also sleeping ten to eleven hours a night but still waking up exhausted.

The next week and a bit more consisted mostly of what now and how fast or how slow should I go and what do you suppose will happen next and I wonder what I need to do about that appointment. While I was looking into all these questions, another letter arrived from Social Security.

Paraphrase:

Your SSI benefits are being suspended beginning next month because you did not do as the law required, which was to apply for all other benefits for which you might be eligible. You have ten days to file an appeal to keep from interrupting your payments. You can have someone represent you but you should probably get in touch with them very soon because we are not fucking around.

love, your friends at the SSA

ok.

uhm,
ok.

well.

[insert here several days of immobile freakout ending with one very short very intense very impromptu surprise extra therapy half-fifty-minutes. no spinning headlines but maybe some black and white noir-psychedelic effects to stand for confusion and distress and then thick cloud cover but for a tiny pinprick of sunlight]

1. I actually did apply for SSDI in 2010. I was determined not eligible because in my entire working life I have not paid enough into the system to be able to get anything back out of it. Have they forgotten? Did something change? I have done no paid work in the last three years and thus have not paid any more taxes of any sort. I will take SSDI if they want to offer, but why is this being held over my head all of a sudden as though I have been neglecting some essential duty for some very long time?

2. I have PTSD from childhood emotional, spiritual, and sexual abuse/rape. There simply is no way for me to approach an authoritative entity without fairly involved preparation. Without preparation I am looking at extremely painful and possibly dangerous physiological cascades that among other things dump so much cortisol into my bloodstream so quickly that I can feel it overflowing its well-marked trenches–the ones it has eroded out of my nervous system over the last fifty years and which we are working constantly to fill back in so that my neurons can more easily reconnect in less alarming ways. Sometimes these reactions occur despite our best efforts to stem them, but usually they can be mitigated in some way if we have some time and space to work with them.

Given this–that is, given the nature of my disability–why and how is it ok for the Social Security Administration to send me these kinds of communications? This whole sequence could not be any more restimulating of trauma-produced neurological pathways if it had been planned expressly for the purpose.

And this was their opening move.

3. I don’t even know. I seem to live in some insane unintuitive upsidedown opposite land. Or I got moved here at some point. Which is it and where is the reasonable universe.

 
 

not an epilogue because time is weird

Today is Sunday. Two days ago I walked downtown to the office of the organization that helped me apply for SS(D)I the first time around. It looks like they will help me now but I still have to figure out how best to light a fire under someone in a very short time when the most I personally can do is say help. um. help? help. With just about that much volume.

Somewhere not too long ago I read something about how the fight/flight/freeze response can become “stuck” in PTSD and that many abused as children learned to freeze and so this is where they get stuck as adults and if this is so then it explains a number of things about weeks like the one that just passed.

I have people. I said to one of them yesterday: I guess I am lucky. And it is true. I am. On my own, I would already be on the street.

post-post-epi-script-logue

To be clear, I am complaining here about how the Social Security Administration is making my life unnecessarily stressful by thoughtlessly taking advantage of my disability to try to shake me off their rolls. But I want also to emphasize that I am lucky because I have help. I will be ok, one way or the other.

See, I do not know if this is a procedure that ticks off every few years for anyone on SSI, where the computer says oh it is time to harass this person for a little while to see if they can be got rid of, and so happens regularly, or if this is a one-time push to see how many people they can cut costs on at one time. But either way it seems abundantly clear to me that it is a deliberate effort to cull people out of SSI benefits, whether they are taking us one at a time or targeting several in one go.

I will leave to the side the complex and worthwhile problem of whether this sort of bureaucratic action is being taken actually to trim payments to people who might no longer need them. It does not look that way to me; they want to see if another agency can fund my benefits. Paper money shuffling. The point, though, is that this sort of maneuvering will undoubtedly cause people like me to lose their benefits quite aside from any question of whether any of us are in need of them: and it will do so by exploiting the fact of our disabilities. They are betting that I will not be up to the challenge of taking them on. They would stand a very good chance of winning that bet very quickly if I did not have access to external resources. Many disabled people do not.

And so this letter is not something that just happens to upset me. It is a manifestation of a systemic failure to address disability in terms that are appropriate for addressing disability without causing further harm.

I do not mean to make claims about some grand conspiracy to bully disabled people out of their benefits (even though my definition of “conspiracy” is shifting these days to include those that are enacted without any well-organized and deliberate agency to guide them). But there certainly is a widespread mythology about disability benefits being abused and individuals getting rich off their Social Security checks. In response to this mythology we certainly can see an array of forces trying to make it harder and harder to obtain disability benefits. And further arguments over who should and should not get how much money for what.

What there is not, that I am aware of, is any conversation in the US that looks at how the Social Security Administration itself treats disabled people, and whether it treats us equitably in its administration of SSI and SSDI.

fly me. or not.

I am trying to find a way to Seattle and back that involves as little money as possible. For reasons about which I can only begin to speculate air travel is less expensive than both rail and bus but no matter which I were to choose I cannot really afford either one. So this may all be moot in my particular case but it still seems pertinent to say:

Looking at the anecdotes posted at tsastatus.net for SEA and SFO sent me diving for a Klonopin. These stories are not particularly graphic and do not consist of the most horrible cases of TSA personal encroachment that have been passed around, but imagining myself in the place of the people describing their experiences as they went through the security line was enough to send a cascade of cortisol through my body. And so I do what is necessary to counteract it.
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ensign

I have not written anything here in quite some time and all I have today is a poem but I think it might be worth reading for some of you maybe. It’s.. well really I would like to hear what you find it to be about.

20110328 update:
It has a title now and I changed the ending which may or may not really be the ending but for now it is.

~~~~~~

Speaking of which
whetting molted silver gelatin and tin
Estate sales without captions
prints adrift.
I have a book in my cupboard it is
a board
for cups or so it..

driftwoods spirit face moving
over water
I jumped. I meant
to go back and jump again

pinned on my back when he leapt
unheard “do
what I say and I won’t
hurt you” only
what he said itself blunt force
bearing down on me
and up

Between “turn
over” and
“you’re free to go”
blank space or not space yet
as blank
eraser ripping paper it was so hard to modulate
the swipe.

whisper it.
Ships topple sails purple
slack waving
Flagstone and remnant coursing according
to tide tables
traced
tenderly

Rescind me.
One hot July night not fighting but
well sighted
Sighed open ceiling white sheetrock
I slipped through
roughshod tottering
a canyon rim yonder lights out
ignites shout under jet
streamed ice waterwheel
turned or
burned
or
fern walled gullies in March I place
my cheek to wet moss

splayed under this body
three times my size
in spasms beyond recall
This gentle assailant stalls
rubbing himself
forgetful.

Myself I could not seize the moment
only counting on time to peter out
slow blinking deriliction no notes
Here the scene ends

and ends
and ends
and never tires of ending

I cut my teeth on critique
could train resolve on careful reasoning
Neither
jester
nor prince and you
read with the cunning of
some species reknown
for sprightly banter be it
blood at the teeth or thick wine
tableside

Me I
sputter and point
words
pelts
Spit sticks like glue
if you choose your materials
with care.

Water
paper
plastic
Thrown at the wheel or under

Foam specks on the lens
where it met
my teeth
If speech embargoed emits
tines or spikes
might tumbled sand anaesthetics
supply torsioned skin as parchment.

In my dreams soldiers shadows steel-browed and tensile
summon aircraft screeching phallic and armed.
Set us to flight or walk or crawl
or pulling one fist of earth over the other against that insistent friction

You
have dreamed it too:
cement walled crawl spaces
transparent tenements for
the likes
of us.

Who could have less to hide–

but drift
across storefronts
under street lamps
crowd into shopping malls
shipyards
senate chambers

–in hairshirts
of many colors
Cache of zinc
and lead
tungsten flame
charm
of mercury vapor
let us
let our wolf note
exhale
half-buried
half-ascent
its troubled
wave battered
breath
now swept low–

Shall I

swear or forewarn
as thought races its
final lap
My legs numb
still lurching seaward.

back.

I may have been six years old the first time I flew back to Seattle. When I was six nobody knew where Seattle was.

I may have been five, or even four–I do know that I was two when we flew from Seattle to go live in Marietta Georgia and shortly after that we flew back, and thus I began flying back to Seattle when I was too young to be afraid to fly and I have continued to fly back to Seattle through a debilitating fear of flying until this day, if you leave out the few years when I would not fly but instead got into the habit of taking the train back to Seattle.
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